The EhlersDanlos Society is the global nonprofit organization dedicated to saving and improving the lives of those affected by the EhlersDanlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.

Our goals are worldwide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do.

Many around the world face a diagnostic odyssey: years, sometimes lifetimes, fighting for recognition, diagnosis, and care. We are working towards a time when geography and wealth no longer determine your quality of life. Education is needed to advance early diagnosis and intervention—and postdiagnosis, patients urgently need support and guidance. We want to give hope to all those living with the EhlersDanlos syndromes and hypermobility spectrum disorders. Visit ehlersdanlos.com

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