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2017.09.30【民視異言堂】高人一等的麻煩病

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【高人一等的麻煩病】
身材高人一等您覺得很令人羨慕嗎對「馬凡氏症」患者來說這卻是一生的夢魘。馬凡氏症也常被稱為「麻煩病」病患會長得又高又瘦尤其手腳特別長但同時也伴隨許多疾病其中最嚴重的是他們的心臟主動脈管壁特別薄很容易剝離、破裂導致心肌梗塞、腦中風而猝死。像是前不久因為心臟病發過世的誠品董事長吳清友就是馬凡氏症患者。馬凡氏症是一種遺傳疾病然而病患們的症狀不但容易被誤診也經常成為眾人嘲笑的對象成長過程處處是艱辛和麻煩。帶您了解這種高人一等的麻煩病。

posted by millinervn


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