This presentation is from the 2021 EDS ECHO Summit: Vascular EhlersDanlos Syndrome (vEDS). vEDS is a genetic connective tissue disorder that causes the blood vessels and organs to be fragile and prone to tearing. The complications of vEDS can be lifethreatening and include aneurysm, dissection, and rupture of the arteries and rupture of organs. vEDS may also cause a variety of other symptoms, including extensive bruising and spontaneous pneumothorax. https://www.ehlersdanlos.com/whatis...

Stephanie Wallace is a genetic counselor with the vEDS Collaborative. She has been an aortopathy counselor for the last 7 years and has so much respect and admiration for the vEDS community. Working with them has driven her to be part of the team that are looking to increase quality of care for these remarkable families.