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2022 Hall of Hope

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Alport Syndrome Foundation

Earlier this summer, ASF asked several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, to share a bit of their stories and what gives them hope for the future.

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ASF 2022 Research Update
ASF 2022 Research Update
Alport Connect 2022: Nutrition and Kidney Disease
Alport Connect 2022: Nutrition and Kidney Disease
Living Kidney Donor Interview: Mack
Living Kidney Donor Interview: Mack
2023 Paul Silver Enrichment Awardee: Rachel
2023 Paul Silver Enrichment Awardee: Rachel
Living with blindness and low vision
Living with blindness and low vision
Real Life Stories: Living with Mast Cell Activation Syndrome | Finding Your Range Podcast Episode 7
Real Life Stories: Living with Mast Cell Activation Syndrome | Finding Your Range Podcast Episode 7
R3R01ASFSGS201 Study Presentation and Q&A
R3R01ASFSGS201 Study Presentation and Q&A
2022 Paul Silver Enrichment Awardee: Alexander Jones
2022 Paul Silver Enrichment Awardee: Alexander Jones
5 Embarrassing things you do, but don't remember, after surgery LIVE
5 Embarrassing things you do, but don't remember, after surgery LIVE
Alport Syndrome Researcher Spotlight: Laura Perin, Ph.D.
Alport Syndrome Researcher Spotlight: Laura Perin, Ph.D.
Justine & Kyle Benoit Caregiver and Testicular Cancer Survivor
Justine & Kyle Benoit Caregiver and Testicular Cancer Survivor
Atrial Fibrillation: New Solutions for an Old Problem
Atrial Fibrillation: New Solutions for an Old Problem
New ACIP recommendations for RSV, COVID19 and pneumococcal vaccines, plus updated flu vaccine
New ACIP recommendations for RSV, COVID19 and pneumococcal vaccines, plus updated flu vaccine
Sunlight: Optimize Health and Immunity (Light Therapy and Melatonin)
Sunlight: Optimize Health and Immunity (Light Therapy and Melatonin)
FREEDOM1 and FREEDOM2 Webinar
FREEDOM1 and FREEDOM2 Webinar
Cavernous Malformation [2020] Ginger Burden | EP 97
Cavernous Malformation [2020] Ginger Burden | EP 97
You didn't try and fix me River's story
You didn't try and fix me River's story
Alport Connect 2022: Registrant Access Details
Alport Connect 2022: Registrant Access Details
What ASF Means to Me
What ASF Means to Me
Alport Connect 2023 Keynote Address: Hopeful Advances in Research
Alport Connect 2023 Keynote Address: Hopeful Advances in Research
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