Adventures with EDS shows my experiences with Ehlers Danlos Syndrome , Postural Orthostatic Tachycardia Syndrome ( POTS ) and Chronic Migraine. Each day I face chronic pain, fatigue and many other symptoms but I still manage to have adventures despite my disability.


In this weeks edition of Adventures with EDS, I have a rough start to the week with the continuation of last weeks POTS flare, some major pain and a migraine to top it off. I finally have the rheumatology appointment at Stanmore which I have been waiting over a year for. I have a productive week pacing and doing things differently than I'd first planned but I end the week doing something very very different! I also take a flat trip to the shop and celebrate our youngest flatmates 18th birthday, do my regular radio show, have lots of rehearsals and work to do and spend some time at home with my beloved bed, boyfriend and mum.


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Blog: ChronicallyJenni.wordpress.com
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Music Credit: Maxixe performed by Edson Lopes https://creativecommons.org/licenses/...