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We sat down with Tish Hevel, the Founder/CEO of TheBrain Donor Project, a unique nonprofit that exclusively supports the brain banks of the National Institutes of Health (NIH), the NeuroBioBank. Tish explained the ins and outs of donating your brain to find answers for Chiari Malformation. Visit braindonorproject.org to become a donor.

The Brain Donor Project was established in late 2016 to raise awareness of the critical need for donated brain tissue to advance the science of brain disease and to simplify the process of becoming a brain donor. To date, nearly 16,000 people have taken steps to become a brain donor when the time comes. They represent more than 160 categories of brain disease…and about half have healthy (or control) brains. The Brain Donor Project was inspired by the death of Tish’s dad, Gene, who died from Lewy Bodies Dementia and was a brain donor himself.

This lecture and Q&A was given completely virtually on September 8, 2022 under the Ask the Expert Series. (2022)

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