Mike DeCoursey lives with vascular EhlersDanlos syndrome (vEDS), after being diagnosed 5 years ago at 37 years old. He suffered a dissection event in 2021 and his knowledge of this condition, and preparation for such an event, helped to save his life. He talks about adapting to life after this event and recovering after lifesaving surgery.

Mike shared his story for Community Voices as part of the EDS ECHO Summit Series: Vascular EhlersDanlos Syndrome. This twoday event was focused on vascular EDS, and covered:

Genetic and molecular biology of vED
Interpreting genetic testing
Psychosocial issues in patients living with vEDS
Exercise with vEDS

Recordings can be viewed here: https://www.ehlersdanlos.com/edsech...