We hope you enjoy our very first patient forum! The focus was how to manage emotional distress and communicate with family for those with hereditary cancer or hereditary cancer predisposition.

Expert panelists include Dr. Tuya Pal who is a genetics physician at Vanderbilt University Medical Center, Dr. Deborah Cragun who is a genetic counselor at the University of South Florida, Dr. Lora Thompson who is a clinical psychologist with an interest in psychosocial oncology, and Dr. Marleah Dean Kruzel who is a communication scientist at the University of South Florida and also a BRCA previvor.

If you have any suggestions for future patient forum topics, please reach out! You can email us at [email protected], reach out on social media, or fill out a contact form on our website (https://inheritedcancer.net/contact/).

Timestamps:
00:00 Introduction
02:10 Adapting Across the Hereditary Cancer Journey
08:42 Being Pressured to Make Decisions
24:53 Coping with Hereditary Cancer
40:54 Summary & Other Resources

1:02:02 Q&A
• 1:02:28 Specific examples of coping strategies
• 1:06:25 Speaking with your children about your inherited cancer or hereditary cancer syndrome
• 1:15:14 Encouraging family to consider genetic counseling or testing without pressuring them
• 1:17:39 Being invalidated by healthcare providers

1:19:10 Closing Remarks


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