Answering your questions on EDS & HSD in honour of Ehlers Danlos Syndromes & Hypermobility Spectrum Disorder Awareness Month

If you have any more questions please let us know in the comments!

Chapters:
00:0000:39 Introduction
00:3901:36 What is EDS and HSD?
01:3602:53 What is the difference between HEDS, HSD and JHS?
02:5304:36 How did you get your diagnosis of EDS?
04:3605:31 Have you always had EDS?
05:3106:25 How does this affect me?
06:2508:36 What are the most common commonality & complications?
08:3609:59 What types of pain do you feel and how do you describe them?
09:5911:30 What are your top EDS hacks?
11:30 14:26 What is your best advice for someone who has been newly diagnosed?
14:26 17:27 How do you explain EDS to those around you?
17:2719:08 How can I support someone with EDS?
19:0820:49 What should I do if I think I might have EDS or HSD?
20:4921:22 Can you have EDS or HSD without subluxation or dislocation?
21:2222:58 Where can I find support as someone with EDS or HSD?
23:0023:48 Conclusion

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Ehlers Danlos https://www.ehlersdanlos.org/

PoTS UK https://www.potsuk.org/

MCAS https://www.mastcellaction.org/