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FSHD Society Radio Show with Sam Ray

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FSHD Society

Join our Radio Show with our guest Sam Ray, a 15yearold, in Tucson, AZ, who is living with Earlyonset FSHD. Sam will talk with our host Tim about how his FSHD motivated him to explore exoskeleton technology, and fostered his love of flying drones. Sam will share the story of his struggles to obtain an adaptive driver’s license and talk about what it is like to be a high school student with FSHD.

This show aired on December 14th. Tune in on the 2nd Tuesday and 4th Thursday of every month for new episodes of our Radio Show. You can also listen wherever you listen to podcasts.

posted by ShooffEffoxe5