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Roman Fenner, former MUSC Norris Lab intern, shares the history of EhlersDanlos syndrome and a research update on the genetics of EDS!

This was presented at the Unite@theHill wellness seminar on May 7, 2023. This biennial event held in/near Washington, D.C. includes a halfday of wellness seminars to help patients and families selfadvocate. The next day is a full day of meetings with those patients’/family members’ federal representatives on Capitol Hill, which helps patients and families advocate for millions of others. (2023)

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