Beth dives into her myeloma experience and how she has managed to live her fullest life with the disease in this fivepart series. (Time codes below for easier video navigation.)

She was just 29 years old and the mother of two young kids when she was diagnosed with multiple myeloma. After firstline treatment of radiation, chemotherapy, and a successful stem cell transplant, she lived 12 years with no sign of myeloma.
When the pain returned, eventually, more scans showed the myeloma was back. She was diagnosed with a relapse a few years later. All told, she underwent 193 sessions of radiation & 9 different treatments before her oncologist told her the myeloma was no longer responding to the three main classes of drugs used (refractory myeloma). That's when he offered a new combination: selinexor (Xpovio), bortezomib (Velcade) & dexamethasone.

Full story & transcript → https://www.thepatientstory.com/cance...

Thank you to Karyopharm for its support of our educational program. The Patient Story has full editorial control of our content. The interview has been edited only for clarity.
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Part 1: First Symptoms
0:00 Beth's Story Summary
3:06 Introduction: Tell us about yourself
5:08 What finally got you to go to the doctor’s office?
6:34 How did you advocate for yourself as a patient?
9:20 When did you first think of cancer?

Part 2: The Multiple Myeloma Diagnosis
9:45 Getting “The Call”
13:10 It took longer to diagnosis because you didn’t fit the “myeloma profile”
15:00 How long were you in the hospital?

Part 3: Processing the Diagnosis
16:22 Getting your prognosis
17:02 Dealing with the possibility of a “terminal” diagnosis + having kids around
18:53 How did you break the news of the myeloma diagnosis + what support was most helpful from other people during this time?
19:48 How did you handle the cancer diagnosis with young children?
22:27 A silver lining to the shifting household roles
22:49 “Let people help you”