Stacy S. shares the subtle symptoms she experienced that eventually led to her diagnosis of myelofibrosis, a rare type of blood cancer. This was actually the SECOND time following a diagnosis years before of essential thrombocythemia.

She started noticing she was getting out of breath more easily during her lunchtime workouts. She also experienced extreme fatigue and felt tired all of the time. However, she assumed it was just because she was getting older. But after more testing, she was diagnosed with myelofibrosis in 2016.

In this cancer vlog, she talks about processing her diagnosis, going through a stem cell transplant and its side effects, and the questions she faced with treatment decisionmaking.

Full story & transcript → https://thepatientstory.com/patients...

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Video chapters:
00:00 Introduction
02:23 My first symptoms
04:37 Getting a bone marrow biopsy
05:28 Learning about my mutations
07:05 Side effects from treatment
16:01 Going through a stem cell transplant
21:15 Words of advice

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#raredisease #bloodcancer #hematology #diagnosis #treatment #transplant #advocacy