Grow your YouTube channel like a PRO with a free tool
Get Free YouTube Subscribers, Views and Likes

IIH + No More Brain Pressure Medication // My pseudotumor cerebri story continues...

Follow
Momming with Migraine

Welcome back, it's been a minute! Last we talked, I was doing well because of a medication. Well, not anymore! But on the bright side, you can finally see my CSF leak on camera! Or at least, what we suspect is a CSF leak, secondary to my high cranial pressure.

I have a condition called idiopathic intracranial hypertension (IIH), or pseudotumor cerebri, which means I have high cranial pressure. I was able to manage my cranial pressure with diamox, so without diamox. I had to discontinue diamox due to side effects. Now, my pressure is high again, so my nasal CSF leak is back (again, all technically conjecture until we are able to test a sample of the nasal fluid drainage).

As far as POTS goes, it's still dramatically improved. I'm managing symptoms of POTS without salt loading! I'm on supplements and lifestyle changes to manage my POTS, no prescriptions. POTS no longer controls my life thanks to Dr. Driscoll at the POTS Care Clinic.

If you're interested in POTS Care for yourself:
○ POTSCare.com You get $200 off your Individualized POTS treatment if you mention me when you call to book.
○ POTS Care Package You get $50 off your Package by using my code, MOMMING
My link: https://potscarepackage.com/partner/m...
○ Supplements: 10% off by using my code, MOMMING
My link: https://vagusnervesupport.com/?rfsn=6...

GET TO KNOW JEN:
○ Daily Life: INSTAGRAM.com/mommingwithmigraine
○ Support me & Get Perks: PATREON.com/mommingwithmigraine


NEW HERE? The LATEST: My Spinal CSF Leak Evaluation (late 2022)
○ NEW MRI Findings!    • SHOCKING NEWS // My OLD Brain MRI Sho...  
○ Joint Hypermobility:    • JOINT HYPERMOBILITY // Showing a POSI...  

SNIPPETS FROM MY PSEUDOTUMOR CEREBRI STORY (2021)
○ Am I Misdiagnosed?:    • Am I MISDIAGNOSED?! // CSF Leak Sympt...  
○ 48hour Flat Test Vlog:    • VLOG + TIPS: The 48hour FLAT TEST //...  
○ My NEW IIH Diagnosis:    • I was MISDIAGNOSED // After 5 years o...  
○ IIH Symptoms my Neurologists Missed:    • Pseudotumor Cerebri SYMPTOMS my Neuro...  
○ Diagnosis Story Update:    • Diagnosis Story UPDATE // No MRI...ti...  
○ Diamox for IIH:    • Prescription DIAMOX for IIH (acetazol...  
○ Passing the Tilt Table Test:    • PROGRESS CHECK // AtHome Tilt Table ...  

SOME POTS VIDEOS…
○ Athome Tilt Table Test:    • Doing an athome TILT TABLE TEST for ...  
○ My POTS Episode Explained:    • PlaybyPlay of a POTS EPISODE // Is ...  
○ POTS & Spinal CSF Leaks:    • POTS and Spinal CSF Leaks // What Eve...  
○ Buddy’s POTS Tasks:    • POTS SERVICE DOG // 4 Tasks my POTS A...  
○ Service Dog POTS Task DPT:    • Our #1 Service Dog TASK for POTS: DPT...  
○ Fainting Caught on Camera:    • Neurocardiogenic Syncope: POTS Fainti...  
○ What Fainting Feels Like:    • What Does FAINTING Feel Like? // POTS...  
○ IIH Symptoms that were Missed:    • Pseudotumor Cerebri SYMPTOMS my Neuro...  
○ POTS Care Package Unboxing:    • Full POTS Care Package UNBOXING// How...  
○ POTS Care Q&A part 1::    • POTS CARE Q & A // Dysautonomia, IIH,...  

WELCOME TO THE SICK SIDE
○ Vestibular Therapy:    • EXERCISES FOR VERTIGO & DIZZINESS / M...  
○ Ginger for Migraine Relief:    • NATURAL MIGRAINE REMEDY? // Testing w...  
○ My Food Triggers:    • FOODS I AVOID FOR MIGRAINES // My Die...  
○ Nausea Relief:    • NAUSEA & Morning Sickness // NATURAL ...  
○ Migraine Life Modifications:    • DaytoDay LIFE MODIFICATIONS I've ma...  
○ Harry Potter Sorting (Jen vs Migraine Jen):    • Harry Potter House Quiz // NORMAL JEN...  
○ Migraine Hacks (Migraine Jen Vlog):    • MIGRAINE VLOG // Life Hacks for Migra...  
○ Advice for Patients:    • ADVICE FOR PATIENTS // How to Advocat...  
○ On Invisible Illness, pros/cons:    • INVISIBLE Illness // The TRUE Pros & ...  

PREVIOUS BABY VIDEOS
○ Infant Potty Training (EC):    • Infant Potty Training! // Our EC Expe...  
○ Baby Potty Training 1 yr Update:    • Infant Potty Training 1 YEAR UPDATE /...  
○ Baby A’s Birth Story:    • NATURAL LABOR & DELIVERY STORY // Unm...  
○ Baby B’s Birth Story:    • Second Baby Natural Birth Story // Ea...  
○ Day in the Life Vlog (Making a YouTube Video):    • Behind the Scenes // A DAY IN THE LIF...  

SOME SERVICE DOG VIDEOS
○ Buddy & Baby A’s First Year Together:    • Service Dog and Baby's FIRST YEAR Tog...  
○ Buddy’s PettoService Dog Story:    • Why Buddy WASN'T Always a SERVICE DOG...  
○ Service Dog Training, Basic Commands:    • Service Dog Training: BASIC COMMANDS ...  
○ Choosing Service Dog Gear:    • Picking Out New SERVICE DOG GEAR // H...  
○ Service Dog Response, Episode Story:    • STORY: Medical Episode with Friends O...  
○ Need vs Want a Service Dog:    • Do I NEED a Service Dog? // My TOP 5 ...  


NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only.

DISCLAIMER: Links included in this description might be affiliate links. If you purchase a product or service with the links that I provide I may receive a small commission. There is no additional charge to you! Thank you for supporting Momming with Migraine so I can continue to provide you with free content each week!

posted by gasreggt