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LEARNING TO THRIVE DESPITE HAVING A CHRONIC ILLNESS

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Becky Hill

This video is all about some of the unique ways I have personally learnt to THRIVE despite having two major #chronicillnesses: a #spinalcsfleak #csfleak & #arachnoiditis / mild #adhesivearachnoiditis

We are all unique in our illnesses and how we respond to and manage them so some of my suggestions may not work for everyone. They are instead how I have learnt to try and live the best life I can despite having them. To see more about my actual experiences with the illnesses, including the acute flares, please see my other videos. This video was instead an attempt to try and find a more positive message amidst all the immense challenges and suffering of having had two extremely painful and debilitating chronic illnesses for 8 1/2 years since a ladder fall in January 2015.

Content Summary:
0:00 Intro
1:08 Pacing ourselves and knowing our limitations
2:00 Being outdoors in nature
2:48 Walking in nature
3:30 Filling our minds with positive inspiration
4:19 Lying down outside if you can't walk
5:23 Gratitude
7:20 True rest
10:00 How do you best rest?
10:44 Accepting limitations & learning how to work with them
12:48 Letting go of who we were to discover the new us
13:03 Learning to manage symptoms
14:24 Focus on what I can do rather than what I can't
14:35 Perspective
14:56 Appreciating what has been gained and learnt
15:54 Perspective shifting & grieving
16:45 Community
17:34 Sharing our stories to help & connect with others
17:55 Spirituality & faith
20:30 Suffering Into A Deeper Spiritual Awakening https://beckyhillblog.com/2018/04/28/...
22:32 There is hope hold on

For the full summary of my medical history and footage of my January 2021 arachnoiditis flare see this 5 min video:    • MY SPINAL CSF LEAK & ARACHNOIDITIS ST...  

To see more about how I manage my arachnoiditis symptoms please see:    • MANAGING MY ARACHNOIDITIS : How I man...  

To read more about my arachnoiditis diagnosis in July 2020 and journey since then see: https://beckyhillblog.com/category/ar...

To view my July 2022 arachnoiditis flare video diaries including symptoms see:    • 12 BIZARRE ARACHNOIDITIS & CSF PRESSU...  

Twitter: Beckyhill3
#chronicillness #chronicpain

UK CSF LEAK CHARITY: https://www.csfleak.info/
US CSF LEAK CHARITY: https://spinalcsfleak.org/
ARACHNOIDITIS CHARITY: https://www.acmcrn.org/
SPINAL CSF LEAKS: Clinical Presentation, Investigation Findings, and Treatment Outcomes of Spontaneous Intracranial Hypotension Syndrome (NHNN authors): https://jamanetwork.com/journals/jama...
ARACHNOIDITIS: ‘Arachnoiditis – Taming the Most Painful Pain’ Dr Forest Tennant video
   • Arachnoiditis—Taming the Most Painful...  ​​
ARACHNOIDITIS: Suspecting & Diagnosing Arachnoiditis (J. Antonio Aldrete) https://www.practicalpainmanagement.c...
ARACHNOIDITIS: Perspective: Lumbar adhesive arachnoiditis (AA)/ Chronic AA (CAA) are clinical diagnoses that do not require radiographic confirmation https://pubmed.ncbi.nlm.nih.gov/36447...

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