"Preparing for the worst and embracing the present."    • Leigh's disease, Life Limiting, Memor...  

The mother of a 5year old with Leigh's Disease, a mitochondrial condition, talks about how with their daughter's uncertain prognosis with short life expectancy they are all about making memories! If your child has Leigh's disease or another pediatric life threatening illness, this mom shares her perspective, which may help you find your way. Visit www.courageousparentsnetwork.org to see more videos.