"I wish somebody had told us about palliative care at the beginning."    • Leigh's disease, Mito, Palliative Car...  

The father of a 5year old with Leigh's Disease, a mitochondrial condition, talks about how palliative care referral should have come at time of diagnosis. If your child has Leigh's disease or another pediatric life threatening illness, this father shares his prospective that may help you find your way. Visit www.courageousparentsnetwork.org. to see more videos.