Primary progressive aphasia (PPA) is a term that refers to a group of dementias that affect a person’s speech and language.

Progressive nonfluent aphasia (PNFA), also known as the nonfluent variant of PPA (nfvPPA) is a form of PPA. PNFA can affect a person’s ability to use speech, form sentences that make sense, or use grammar appropriately. Difficulties with word order and sentences can be present in writing as well as speech.

Bill, who lives with PNFA, and his wife Joan tell us their story and share advice for others who may be affected by a PNFA diagnosis. They are joined by Dr Chris Hardy from the UCL Dementia Research Centre who shares clinical insights including causes, symptoms and available support.

This is part of a series of short films highlighting the stories of people living with different, rare forms of dementia. You can view the full series on the Rare Dementia Support website: raredementiasupport.org.