Hello and welcome back to another video (or a big welcome if you're new here!) Today's video is my second for EDS Awareness Month 2021 and I've managed to get some brilliant people on board to talk about their experiences of EhlersDanlos Syndrome. So thank you so much to everyone who has taken part in this video, and also thank you to the people who were interested in taking part but unfortunately weren't well enough this time round. In this video, we are focussing on medical professionals who have shown a lack of understanding and/or compassion, and the impact this can have on diagnosis, treatment and support.

I hope hearing all these different stories of the lack of understanding people have faced will be helpful to those who have been through (or are currently going through) something similar. And I hope it will help people who don't have EDS to understand how difficult it can be when medical professionals don't understand or believe in your condition.

Please do let me know if there are any other videos you would like to see me film whether they're about EDS, another condition or something completely different. There are more videos coming in my EDS Awareness Month 2021 series, so keep your eyes peeled for those. And there will also be a series of Reels on my Instagram about EDS as well.

In this video:

Navy Rainbow Zebra Sweater Sugarhill Brighton (No longer available)

Where to find support for EDS:

EDS UK https://www.ehlersdanlos.org

The EhlersDanlos Society https://www.ehlersdanlos.com

Hypermobility Syndromes Association https://www.hypermobility.org

Where you can find the contributors:

Alexis Instagram https://www.instagram.com/therarewand...

Alexis Blog https://therarewanderer.travel.blog

Alyssa https://www.instagram.com/healwithaly...

Andi   / azebrareads  

Damita Duplantis Alaskinsgurl on IG (Couldn't find a link)

Hayley https://www.instagram.com/ze.clay/?hl... and   / hayleyk.lowery  

Jack   / mr.jackcat1  

Julia https://www.instagram.com/julia_k_per...

Steph https://www.instagram.com/stephkall/?...

Katya   / ekaterinaizlesakoroleva  

Maria   / marifermarin20  

Marisol https://www.instagram.com/solprni/?hl=en

Nandini https://www.instagram.com/nini.ribeir...

Nicolle https://www.instagram.com/nicollewagn...

Paige   / paigeefithian  

Onikage https://www.instagram.com/autishblog/...

Rachael   / therapissedtm  

Previous videos about EDS:

EDS Awareness Month Making the invisible visible    • EDS Awareness Month  Making the invi...  

Daily Life with EDS    • Daily life with Ehlers Danlos Syndrom...  

What is EDS like on MY body    • What is EDS like on MY Body? | #ThisI...  

Diagnosis with EhlersDanlos Syndrome    • Diagnosis with EhlersDanlos Syndrome...  

Letters from someone with EDS    • Letters From Someone With EDS | #This...  

EDS Myths and Facts    • EhlersDanlos Syndrome (EDS)  Myths a...  

EDS Awareness Month Diagnosis and Symptoms    • EDS Awareness Month 2020 | Diagnosis ...  

EDS Awareness Month Daily Life, Positives and Negatives    • EDS Awareness Month 2020 | Daily Life...  

Where you can find me:

Blog www.jaffacat.co.uk
Facebook https://www.facebook.com/Ramblingsofa...
Twitter @Jennycole04
Instagram @Jennycole1988
Pinterest Jennycole44
Google+ https://plus.google.com/+JennyColeJaf...
Snapchat Jennycole44

Anything marked with a * has been sent to me for review purposes, but all opinions are my own and I will only talk about products that I feel fit in with my channel/blog.

Music by Epidemic Sound (http://www.epidemicsound.com)

I'd love to hear your comments and will reply to as many as I can :)