Mark set up the original Kallmann syndrome support group, HYPOHH in the 1990's after being diagnosed with Kallmann syndrome at the age of 22.

He was the first person I met with Kallmann syndrome.

Through the HYPOHH group and the information booklet he wrote he raised the awareness of the condition and helped patients connect with other patients. The booklet is still available in PDF form.

We have groups on Facebook where patients can talk with other patients from around the world and gain more information on this rare condition.

http://delayedpuberty.com