This was a very vulnerable video for me to make but I wanted to share with you my symptoms of MALS in the hope that my experience helps someone else. MALS is so rare and hard to diagnose and often unheard of by many medical practitioners. Here are some of my symptoms as they presented from infancy through childhood, to hitting my worst and becoming tube fed, to now as they are improving. I hope you find this helpful. Also please note, nothing on my channel is ever medical advice, always talk to your medical team, take everything I say with a grain of salt and also know that many of these symptoms can cross over with other conditions.
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Here are links to my series of hospital vlogs sharing my experience getting my surgical feeding tube
Part 1:
• GETTING A SURGICAL FEEDING TUBE: My E...
Part 2:
• FEEDING TUBE SURGERY VLOG part 2! Pha...
Part 3:
• FEEDING TUBE SURGERY VLOG part 3! (GJ...
Part 4:
• FEEDING TUBE SURGERY VLOG prt 4! How ...
Part 5:
• Feeding Tube Surgery Vlog Prt5! GOING...
Recovering:
Week1:
• Feeding Tube Surgery Vlog Prt5! GOING...
Week2:
• A Week in the Life Recovering at Home...
Week 3:
• Days in the Life Recovering from Feed...
Week 4:
• 4th Week Recovering Post Feeding Tube...
Week 5 (infection):
• Serious Feeding Tube Infection :( Wee...
Week 6 (Admission):
• Admitted for Serious Feeding Tube Inf...
Week 8 (Follow up after admission):
• What's Causing my Feeding Tube PAIN? ...
Feeding Tube Playlist:
• Feeding Tube Videos
Hospital Vlog Playlist:
• Hospital Vlogs
My surgical feeding tube experience playlist:
• Surgical Feeding Tube Experience
Why I got a feeding tube:
• So, I'm Getting a Surgical Feeding Tu...
My Naso Feeding Tube Placement (Surgical Placement):
• Hospital Vlog: Getting a Feeding Tube...
My Naso Feeding Tube replacement (NG Tube nonsurgical):
• Getting a smaller feeding tube!!! FUL...
My Link Tree:
https://linktr.ee/purpose_in_this_jou...
My Channel:
/ @iammellbell
Instagram:
/ purpose_in_this_journey
Facebook:
/ purposeinthisjourney