Learn how Sharon was diagnosed with Retinitis Pigmentosa at 11 and wasn't diagnosed with Refsum until 40 years later. Did you know that one in 300 people who have Retinitis Pigmentosa also have Refsum disease? As Sharon learned early diagnosis could have improved her quality of life. Dietary therapy can slow sight and hearing loss associated with Refsum and lessen other symptoms.

Join the Global DARE Foundation in making a difference for the Refsum community. Visit our website at https://www.defeatadultrefsumeverywhe.... Please share this video to raise awareness and enable early diagnosis!
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