I cannot believe that EDS (Ehlers Danlos Syndrome) & HSD (Hypermobility Spectrum Disorder) awareness month has come round quite so quickly again! This is the beginning of my 4th annual set of EDS awareness month videos which bring together people from across the world with different types of EDS & HSD to raise awareness and tell you what it is like to live with these conditions on a daily basis. It would mean the world to us if you could share and help raise awareness this EDS awareness month 2020.

This week I asked my wonderful dazzle of zebras to tell me about some of things that they wished other people would know and understand about what it's like to live with Ehlers Danlos Syndrome or Hypermobility Specturm Disorder. It includes discussion about the impact of living with an invisible illness as well as the uncertainty and how many of us hope the coronavirus pandemic may bring a new level of understanding to those who don't live with chronic illnesses.

If you found this video helpful or informative please consider donating to our fundraiser for the EDS society https://www.justgiving.com/fundraisin... . You can find more information about EDS & HSD by visiting ehlersdanlos.com


I'm Chronically Jenni & I was diagnosed with EDS, POTS & a CSF leak in 2016 and I make weekly vlogs about my life with chronic illness as well as content that helps other people living with these conditions and raises awareness.

You can also find me on other social media:

Facebook:   / chronicallyjenni  
Instagram:   / chronicallyjenni  
Twitter:   / jennipettican  
Facebook support group:   / 785786465114178  
Mixcloud: https://www.mixcloud.com/jennipettican/
Email: [email protected]
Patreon:   / chronicallyjenni  
Kit: https://www.kit.co/chronicallyjenni
Blog: https://www.chronicallyjenni.wordpres...

Music Credit: Youtube Audio Library

Meet this year's Dazzle:

Alexis, 19, Alberta, Canada. hEDS. Instagram @ggalexis12 or @therarewanderer

Amy, 24, Dunblane, Scotland. hEDS. Instagram @ymagunn

Becca, 36, Surprise, Arizona, USA. hEDS. Instagram @the_stoli_zebra Co founder of AZ Zebras (non profit support group in Arizona.)

Bradley, 28, Merrigum, Victoria, Australia. vEDS. Instagram @veds_zebra

Catalina, 21, Chile. hEDS. Instagram @_linacata_

Chloe, 29, Liverpool, UK. hEDS. Instagram @Chloeleanne123 Blog www.chloeschronicallycomediclife.com

Desiree, 27, New Jersey, USA. hEDS. Instagram @deschwartz16

Gemma, 23, Bedfordshire, UK. Instagram @gembaileysmith

Hailey, Ohio, USA. hEDS. Instagram @hailhailfail

Iga, 19, Poland. hEDS. Instagram @zebrasmatter Facebook Codzienność w paski

Izzy, 23, New York, USA. hEDS. Instagram @izzykornblau Youtube @Izzy Kornblau

Jayme, 29, Chicago, Illinois, USA. hEDS. Instagram @msjaymelee

Jeannie, London, UK. hEDS. Instagram @jeannie_di Youtube @Jeannie Di Bon

Jenni, 24, Essex, UK. hEDS. Instagram @chronicallyJenni Youtube @Chronically Jenni blog www.chronicallyjenni.com

Jess, Hertfordshire, UK. hEDS. Instagram @jessgibson678

Jelly, 16, Wisconsin, USA. waiting for genetic testing for cEDS vs hEDS. Instagram @jelly_is_still_sick

Kim, 31, Ireland. hEDS. Instagram @chronicallykim Facebook @ChroniclesofKim

Laura, 25, Sheffield, UK. hEDS. Instagram @LolaaMaple

Leslie, 23, Florida, USA. hEDS. Instagram @bellabunny1027

Maddie, 19, North Carolina, USA. hEDS. Instagram @maddies_recovery

Meg, 23, Norwich, UK. hEDS. Instagram @Megnnnrrr

Natasha, 19, Kentucky, USA. Snapchat adams_natasha17

Raquel, 25, Lisbon, Portugal. HSD. Instagram @wonderland.rc

Rebecca, 24, Hertfordshire, UK. hEDS. Instagram @beccaarlouise

Romane, 23, Switzerland. hEDS. Romane also has Autism and was uncomfortable speaking on camera so made signs and Jenni did a voiceover on her pieces. Instagram @roman.esque

Suzanne, 32, Aberdeen, Scotland. hEDS.

Taylor, 14, North Texas. HSD. Instagram @infinitlysunny

Sydney, 23, Ohio, USA. cEDS. Instagram @clinicallychronically