This episode of Rare Together examines the impact of being a parent to a child diagnosed with a rare disease, and we are honoured to share Megan’s story with you.

Her son was diagnosed with FOXG1 syndrome in 2022, and since then, she and her husband have used their experiences to start The Children's Rare Disorders Fund and Rare Parenting Magazine.

The full episode is available now on our channel:    • “I think rare disease has a branding ...  

While you’re there, don’t forget to like, subscribe, and share your thoughts with us in the comments. ✅

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