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Alport Syndrome Foundation

Members of the Alport Syndrome Foundation (ASF) community share ways ASF has helped
throughout their respective patient journeys.

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ASF 2022 Research Update
ASF 2022 Research Update
Alport Syndrome Researcher Spotlight: Laura Perin, Ph.D.
Alport Syndrome Researcher Spotlight: Laura Perin, Ph.D.
Matthew Perry's Death From Ketamine Explained (Is It Safe For You?)
Matthew Perry's Death From Ketamine Explained (Is It Safe For You?)
ASF Meaning
ASF Meaning
2022 Hall of Hope
2022 Hall of Hope
2023 Paul Silver Enrichment Awardee: Rachel
2023 Paul Silver Enrichment Awardee: Rachel
Living Kidney Donor Interview: Mack
Living Kidney Donor Interview: Mack
Living with blindness and low vision
Living with blindness and low vision
R3R01ASFSGS201 Study Presentation and Q&A
R3R01ASFSGS201 Study Presentation and Q&A
Alport Connect 2022: Nutrition and Kidney Disease
Alport Connect 2022: Nutrition and Kidney Disease
2022 Paul Silver Enrichment Awardee: Alexander Jones
2022 Paul Silver Enrichment Awardee: Alexander Jones
New ACIP recommendations for RSV, COVID19 and pneumococcal vaccines, plus updated flu vaccine
New ACIP recommendations for RSV, COVID19 and pneumococcal vaccines, plus updated flu vaccine
4 Tricks for when doctors gaslight you Dr. Kaveh LIVE
4 Tricks for when doctors gaslight you Dr. Kaveh LIVE
The Stories Behind the Survivors
The Stories Behind the Survivors
FREEDOM1 and FREEDOM2 Webinar
FREEDOM1 and FREEDOM2 Webinar
Fighting back against Chronic Illness! My Medications! 12418
Fighting back against Chronic Illness! My Medications! 12418
Researcher Spotlight Dr Rachel Lennon
Researcher Spotlight Dr Rachel Lennon
Transplant Patient Covid Vaccine Side Effects (Does It Really Protect Me?)
Transplant Patient Covid Vaccine Side Effects (Does It Really Protect Me?)
5 Embarrassing things you do, but don't remember, after surgery LIVE
5 Embarrassing things you do, but don't remember, after surgery LIVE
2 years of TBI/Head injury recovery and resilience A story celebrating life post brain injury
2 years of TBI/Head injury recovery and resilience A story celebrating life post brain injury
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